💜 Marysia: A Brave Little Girl Fighting for a Seizure-Free Childhood

At just four years old, Marysia had already faced more hospital visits than most adults do in a lifetime. Her parents first noticed something was wrong when she began having sudden, unexplained episodes—her body would stiffen, her eyes would flutter, and she’d lose awareness for a few seconds. At first, they thought it was fatigue or daydreaming. But the episodes became more frequent, more intense, and more frightening.

Doctors diagnosed Marysia with a rare form of epilepsy—one that didn’t respond well to standard medications. Her seizures were unpredictable and often came in clusters, leaving her exhausted and disoriented. The condition affected not only her physical health but also her ability to learn, play, and connect with other children.

Despite the challenges, Marysia remained a beacon of light. She loved coloring, dancing to music, and cuddling with her stuffed bunny named Lulu. Her laughter, though interrupted by seizures, was contagious. Her parents described her as “a warrior in pigtails.”

Her treatment journey involved trial after trial—medications, dietary changes, and even experimental therapies. Each setback was met with resilience. Her family became fierce advocates, raising awareness about rare epilepsies and connecting with other parents through support networks like CURE Epilepsy.

Marysia’s story reached beyond her hometown. Her courage inspired fundraisers, awareness campaigns, and even a local art exhibit where children painted what “hope” looked like—many of them drawing Marysia with her bunny, smiling under a rainbow.

Though her seizures haven’t disappeared completely, Marysia has made progress. She now goes days without an episode, attends preschool with support, and continues to dream big—her latest wish is to become a veterinarian “so animals don’t feel sick like I do.”

Her journey is far from over, but Marysia’s spirit reminds us that even the smallest fighters can make the biggest impact.